Posted On: Thursday, July 04, 2019
Our son Charley was diagnosed with Duchenne muscular dystrophy in August 2004, when he was three years old. We were crushed to learn that Charley has Duchenne, an aggressive and progressive muscle wasting disease that is 100 percent fatal. But at least we felt assured that he would have nearby access to the best medical care available, and opportunities to participate in clinical trials for new medicines. Our hometown of Alford, Massachusetts is just a two-hour drive from both New York City and Boston, two cities known as hubs for medical care and innovation.
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